Sensorineural hearing loss
American Society for Deaf Children
http://www.deafchildren.org
Boys Town National Research Hospital
http://www.boystownhospital.org/pages/default.aspx
The Decibels Foundation
http://www.decibelsfoundation.org
The Harvard Medical School Center for Hereditary Deafness
http://hearing.harvard.edu/
Hearing Health Foundation
http://hearinghealthfoundation.org/
Hereditary Hearing Loss Homepage
http://hereditaryhearingloss.org/
Mitomap
http://www.mitomap.org/
National Association of the Deaf
http://www.nad.org/
National Institute on Deafness and Other Communication Disorders
http://www.nidcd.nih.gov
National Deaf Children's Society
http://www.ndcs.org.uk/
National Institute on Deafness and Other Communication Disorders: Auditory Neuropathy
https://www.nidcd.nih.gov/health/auditory-neuropathy
Self Help for Hard of Hearing People
http://www.hearingloss.org/
United Mitochondrial Disease Foundation
http://www.umdf.org/
Usher Syndrome
A Guide to Visual Disabilities: How Colleges Help Visually Impaired Students Succeed
http://www.affordablecollegesonline.org/colleges-helping-visually-impaired-students/
Australian Deaf-Blind Council:
http://deafblind.org.au/
Boys Town National Research Hospital: Usher Syndrome Information
http://www.boystownhospital.org/research/molecularstudies/Pages/UsherSyndrome.aspx
The Coalition for Usher Syndrome
http://www.usher-syndrome.org
The Foundation Fighting Blindness
www.blindness.org
The National Consortium on Deaf-Blindness
http://nationaldb.org/
National Institute on Deafness and Other Communication Disorders: Usher Syndrome
https://www.nidcd.nih.gov/health/usher-syndrome
The Unique Educational and Services Needs of Children with Deaf-Blindness
http://www.tsbvi.edu/seehear/archive/unique.html
Partners-Affiliated Clinical Genetics Services for Hearing Loss:
Children's Hospital Boston, Department of Otolaryngology and Communication Disorders Genetic Counseling Clinic
To schedule an appointment, call 617-355-4534.
Massachusetts General Hospital, Pediatric Genetics Program
To schedule an appointment, call 617-726-1561.
http://www.massgeneral.org/children/services/treatmentprograms.aspx?id=1632